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”It´s incredible how much I´ve had to fight.” Negotiating medical uncertainty in clinical encounters.

机译:“我不得不战斗多么令人难以置信。”在临床遭遇中谈判医学的不确定性。

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摘要

Purpose: Clinical encounters related to medically unexplained physical symptoms (MUPS) are associated with high levels of conflict between patients and doctors. Collaborative difficulties are fused by the medical uncertainty that dominates these consultations. The main aim of this study is to explore the interactional dynamics of clinical encounters riddled by medical uncertainty, as experienced by people living with long-term medically unexplained fatigue in Norway. Method: A qualitative thematic analysis of written texts from 256 study participants. Results: We found that patients experience being met with disbelief, inappropriate psychological explanations, marginalisation of experiences, disrespectful treatment, lack of physical examination and damaging health advice. The main source of their discontent is not the lack of biomedical knowledge, but doctors who fail to communicate acknowledgement of patients’ experiences, knowledge and autonomy. War metaphors are emblematic of how participants describe their medical encounters. The overarching storyline depicts experiences of being caught in a power struggle with doctors and health systems, fused by a lack of common conceptual ground. Conclusion: When physical symptoms cannot be detected, explained and managed by biomedical knowledge and technology, good doctor-patient partnerships are crucial. Without clearly acknowledging patients’ perspectives and capabilities in clinical practice, such partnerships cannot be achieved.
机译:目的:与医学上无法解释的身体症状(MUPS)相关的临床遭遇与患者和医生之间的高度冲突相关。协作困难被主导这些咨询的医学不确定性所融合。这项研究的主要目的是探讨挪威因长期遭受医学上无法解释的疲劳的人们所经历的,因医疗不确定性而困扰的临床交流的互动动态。方法:对来自256个研究参与者的书面文本进行定性的主题分析。结果:我们发现患者的经历令人难以置信,心理解释不当,经历被边缘化,不尊重治疗,缺乏体检和有害健康建议。他们不满的主要原因不是缺乏生物医学知识,而是无法传达对患者的经历,知识和自主权的承认的医生。战争的隐喻象征着参与者如何描述自己的医疗经历。总体故事情节描述了由于缺乏共同的概念基础而与医生和卫生系统陷入权力斗争的经历。结论:当无法通过生物医学知识和技术检测,解释和管理身体症状时,良好的医患合作关系至关重要。如果不明确承认患者在临床实践中的观点和能力,这种伙伴关系就无法实现。

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